We are at clinic at NIH.
Today was the worst port accessing ever (no fault of our wonderful nurse!!!). I think it was because Hannah is just SO DONE with having her port accessed each week. I don't blame her. I am done, too! Plus, after the emotional high of being in NYC for Make-A-Wish I think it was just so hard to come back to the reality of life with Aplastic Anemia.
But the most amazing news of today ------ Hannah's white blood cell count is in the NORMAL RANGE. Yes, N-O-R-M-A-L!!!!!! It is only her white blood count so her hemoglobin & platelets are still low but I am cautiously feeling a bit that maybe-possibly-please-please-please-hopefully-could-it-really-be that the ATG treatment Hannah got in June is maybe starting to work. We still have to "wait & see" ... we still have to go to Seattle & continue on with plans for a BMT because the rest of her blood counts may not follow into the normal range.
But for today, this is the first really good news we have had about Hannah's vacationing bone marrow since all of this started in December. Yes, December. It has really been that long!
Just wanted to share the GREAT NEWS from our last day of clinic visit at NIH for this summer. We love the entire team here & will miss our nurses & doctors. Thank you NIH 1NW for all your love & care!!!!!
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Hallalujah Hannah!! Let's celebrate this -- dont know what it means in the big picture but it is definately something to celebrate over!!! Hannah -- you rock! Keep it up bone marrow!
ReplyDeleteHOORAY, HOORAY, HOORAY for some uplifting positive news!!!! Love Amy
ReplyDeleteWOW! That really is great news! God works in funny ways!
ReplyDeleteHey, just want to make sure that you received the card that I sent Hannah, before you leave the hospital?...I sent it last week...I hope it made it! :) Jaime
That is great news! I am so happy for you! I keep my fingers crossed!!!
ReplyDeleteHilde, Norway
Great News!
ReplyDeleteIt was so good to see good news!
so good to see a little light at the end of the tunnel. keep the good new coming
ReplyDeleteGod has a plan, we must keep believing!!!!
ReplyDeletePraise the Lord!!!
ReplyDeletePraise God for that good news! We're praying for the rest to repond too. SO GREAT to see you all tonight!!!! God's blessings & joy to your whole family.
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