Just Another NORMAL Day

Hannah's doctor at NIH said to hold off on giving red blood cells until Hannah is symptomatic (also, our dear friend Alan called -- he is a doctor friend that is like family to us). Alan really encouraged me to not get caught up in what Hannah's numbers are for just one visit to clinic. Thank you, Alan, for the encouragement to just keep an eye on the trends ... and those trends have been stable!! A lot to be thankful for. We will go back to clinic on Friday to check things & make the doctor here feel comfortable :-)

Here is a picture of Lily from tonight -- it was just her & I. So nice to have an outing with my little girl - just running errands & having frozen yogurt together. I have missed so much time with her & finally I am starting to feel back to myself. Being with Lily is so fun & such therapy!

PS -- The countdown is on to Hannah's 8th Birthday -- she will be 8 on Sunday!!!!!!! She was given some money as a special gift & she wants to use it for annual passes to Disneyland. It is kind of like a 2nd "Make A Wish" ... of course, after all her Hollywood adventures this might be like a 5th "Make a Wish" ... can't have too many when you have been through what she has been through! Thank you, friends, for this gift!