* Bone Marrow Transplant is still officially on hold. Hannah has gone without a blood or platelet transfusion since the beginning of October -- this is huge!! If she can remain "transfusion free" she will not need a bone marrow transplant. What an answer to sooooooooo many prayers! Thank you, Lord!!! Last December she was getting transfusions at least once a week, sometimes more frequently!?! If her bone marrow fails again it is my understanding that she will go right to transplant. Her donor in Europe is "on hold".
* Hannah's counts are holding steady. White blood cells 5.3, Hemoglobin 8.5, platelets 45K. ANC is 3,000! These numbers are so encouraging!!!!! Truly a miracle!
* We fly this coming Sunday to the NIH for Hannah to have a follow-up bone marrow biopsy on Monday, 12/21. The biopsy will tell what is really going on at a cellular level with Hannah's body (the bone marrow is the "factory" making red / white cells & platelets).
* We just got the OK, via email, from Hannah's NIH doctor, that she can go back to school in January!!!!! Yes, you just read that right: HANNAH CAN GO BACK TO SCHOOL .. GO BACK TO NORMAL LIFE ... GO BACK TO FRIENDS .. GO BACK TO THE PLAYGROUND!! Jim & I are working with the principal of her school to find the best possible teacher for Hannah. It will be a huge transition for her!
* Hannah DOES NOT know that the doc has approved her going back to school (so if you see her at the Fusion Christmas party, PLEASE DO NOT SAY ANYTHING!!!!). We are "working the conversation" with her so she can start adjusting her mind to the idea of going back to school in January.
Here are some pictures from life at home.
Things have just been normal for us & honestly, it is emotionally overwhelming. Why? I really don't know. I guess all the emotions I could not let out during all those months of hospital stays & endless clinic appointments have finally caught up to me.
Happy girl playing play dough this morning in her absolute favorite pajamas (she calls them "zip its" b/c they zip up. And yes, I realize I needed to wipe her nose!
Hannah at Jenna's 8th birthday party this past Saturday. A "Girl's Rock" party .. so fun!
What a sweetie pie!
Two sisters camped out together in the guest bedroom ... I love how their arms are in the same position!
Out for a walk while Hannah was having school at home with her teacher.
She is a total cheese .. appropriate that she is eating Cheese Puffs "Nack, Nack" (Snack).
All God's Best from HOME --
Deb,
ReplyDeleteGive me a call when you can. Becuase Hannah has been out for a while, you may want to consider some interventions that can easily be set up to accomidate and modify the curriculum to help her. Im not sure if you are in etiwanda or alta loma School districts but either one, I have plenty of experience working with and if you need some help getting these things set up, I would be happy to help. You can also get her placed in Special ed for a period of time so she can be pulled out of class for small time periods each day in order to catch up on skills (if she needs that). Let me know if you need some help.
Hugs and WONDERFUL news!!!!
Christy
Good grief! I am finally catching up with you!!! You have been BUSY!! So, sorry you have felt lousy! Such a wonderful report on Hannah!!!!!!
ReplyDeleteMerry Merry!
Diana
P.S: I am emailing about your new Bamboo Baby!